PedNet Haemophilia Research Foundation

About PedNet Haemophilia Research Foundation

The PedNet Haemophilia Research Foundation is an independent international organisation dedicated to promote scientific research relating to haemophilia and allied disorders. The foundation coordinates an international network of centres specialising in haemophilia and participating in the PedNet Study Group. It manages a database (the PedNet Registry) with clinical data about children with haemophilia born since the first of January 2000 who are being treated at a participating centre. Currently 34 centres from 18 countries are collaborating.

Keywords

• Cohort Study
• Haemophilia
• Observational Study
• Registry
• Research

Address

• Headquarters

  BaarnUtrecht, Netherlands

Team by function

Based on 6 public job profiles as of 4 September 2026.

• Administrative / Office2
• Data / Analytics / Science1
• Legal / Compliance1
• Operations1
• Research / R&D1