World Duchenne Organization

Over World Duchenne Organization

The World Duchenne Organization (WDO) is a worldwide organization connecting 52 member patient organizations from 39 countries dedicated to finding a cure and viable treatments for Duchenne Muscular Dystrophy, a degenerative and fatal neuromuscular condition that affects mainly boys and men. Approximately one in 5,000 live male births worldwide results in Duchenne.

The WDO has made it its mission to promote good standards of care, inform patients and create a hub to support and evolve our activities through dynamic advocacy and an active, vocal and informed patient body around the globe.

Our notable advocacy partners include the European Patient's Forum, EURORDIS, ENMC and Rare Diseases International. WDO is an eligible member of European Medicines Agency.

Trefwoorden

• Advocacy
• Defeating Duchenne Muscular Dystrophy
• Developing Standards Of Care
• Fighting For Social Inclusion
• Gathering Data And Insight Into Duchenne
• Informing And Sharing Knowledge With Parents And Families
• New Born Screening
• Proper Genetic Testing
• Proper Genetic Testing
• Raising Awareness Through Campaigns And Actions

Adres

• Hoofdkantoor

  Landjuweel 343905PG VeenendaalUtrecht, Nederland

Team per functiegebied

Gebaseerd op 1 openbare functieprofielen, stand van 3 september 2026.

• Executive / C-Suite1