Alpha 1 MZ Foundation Information AND Research

Over Alpha 1 MZ Foundation Information AND Research

We are a nonprofit organization with highly motivated  individuals, which provides in depth information about Alpha1 Antitrypsin Deficiency. This information is based on Medical Research, Biobank Data and Clinical Cases finding and intended for patients and medical professionals interested in Alpha 1 Antitrypsin Deficiency.

We attend to all Alpha1 patients / groups worldwide, with a focus on Alpha 1 Genotype MZ, because of the serious undiagnosed health effects on ~35Mil persons globally, and the massive negative financial impact of this heritable disease on national health spending and GDP.

Mission / vision

It is our missions to advance the understanding of Alpha 1 Antitrypsin Deficiency, for patients, medical professionals, and national health services on a global basis, including supporting & drive the big pharma with the introduction of the appropriate affordable health care solutions to a global market.

Communication strategy

We inform all interested parties through newsletters, & social media on a regular basis including a website in multiple languages.

(Links etc.)

Trefwoorden

• Alpha 1 Mz Information And Research For Medical Professionals.
• Alpha 1 Mz Information On Neuropathy
• Alpha1 Antitrypsin Deficiency Genotype Mz
• Patient Centered Offering Information And Resources.

Adres

• Hoofdkantoor

  NieuwegeinUtrecht, Nederland

Team per functiegebied

Gebaseerd op 2 openbare functieprofielen, stand van 4 september 2026.

• Executive / C-Suite2