Acanthamoeba Keratitis Eye Foundation

Over Acanthamoeba Keratitis Eye Foundation

The Acanthamoeba Keratitis (AK) Eye Foundation was founded on March 22 of 2022 by our Founder and Chairman Juliette Vila Sinclair Spence an AK Warrior, who life changed end February 2017 due to the rare eye disease named Acanthamoeba Keratitis (AK). Based on her experience and what she saw on others worldwide – a real gap in information, non-standardize diagnose and treatment, nor support and research in regard to AK – she made her mission to become an AK Patient Advocate by giving it a voice, a face and felt inspired to create the first worldwide foundation focused 100% in this rare disease Acanthamoeba Keratitis.

Our mission is to create global awareness and educate contact lenses users as well as the medical communities about Acanthamoeba keratitis (AK), a rare disease that contact lens users are at higher risks of obtaining, mainly due to the association with contact lenses and water.

Our goal is to educate the public of best practices when using contact lenses. As Acanthamoeba Keratitis is said to be “rare” there is a lack of disbelieve and knowledge not only in the public – as people do not know that contact lenses and water are a bad combination—even when showering, swimming, or using a hot tub -, but also in the medical communities that often leads to misdiagnosis, no standardized treatment options available, no comprehension of the pain or good pain management, and advocate for AK warriors (patients) about their psychological impact and aftermath of the burden of associated costs to suffering this rare disease.

Trefwoorden

• Acanthamoeba Keratitis
• Patient Journey
• Patient Voice
• Patient'S Perspective
• Support Group

Adres

• Hoofdkantoor

  Bertus Aafjeshof 1801628VV HoornNoord-Holland, Nederland

Team per functiegebied

Gebaseerd op 2 openbare functieprofielen, stand van 3 september 2026.

• Founder / Owner2